The Faces of LGMD

Meet those living with limb-girdle muscular dystrophy and the people who love them. From spotting early signs and symptoms to weathering the emotional upheaval an LGMD diagnosis delivers, their stories explore it all.
Discover their stories.

 

 

AN EMOTIONAL ROLLER COASTER

Posted Sept 29, 2020

There is an art to living with LGMD. Those with the disease, and the people who love them, must continually reimagine how to live with grief and loss. Katherine, 42, opens up about how she meets the emotional challenge of life with limb-girdle muscular dystrophy.

See Katherine's Story
The Early Years
Posted

Early warning signs of LGMD

Pursuing a Diagnosis
Posted

Living 16 years with a misdiagnosis

Receiving a Diagnosis
Posted

Uncovering an LGMD subtype with diagnostic tests

Living with LGMD
Posted

Working, driving and thriving with LGMD

Stay Connected

Providing knowledge about limb-girdle muscular dystrophy and looking ahead to a future of developing transformational therapies.

Get Updates