Resources

LGMD Resources

The limb-girdle muscular dystrophy community is inspiring and supportive. There are many helpful resources and organizations to support families living with LGMD. Here are just a few to get you started.

Coalition to Cure Calpain 3:
https://www.curecalpain3.org/

Jain Foundation:
https://www.jain-foundation.org/

Kurt+Peter Foundation:
https://www.kurtpeterfoundation.org/

TREAT-NMD:
https://treat-nmd.org/

GFB Onlus:
http://www.beta-sarcoglicanopathy.org/

Muscular Dystrophy Association USA:
https://www.mda.org/

LGMD 2L Foundation:
https://www.lgmd2l-foundation.org/

LGMD 2D Foundation:
http://lgmd2d.org/

LGMD 2i Fund:
https://www.lgmd2ifund.org/

The Speak Foundation:
https://thespeakfoundation.com/

Camrons Cure:
https://camronscure.com/

Sarepta does not endorse nor is responsible for the content of any of the listed websites or the services provided by these organizations. This is not a complete list of available websites.

If your LGMD advocacy organization does not appear on this list and you would like to make contact with Sarepta, please email advocacy@sarepta.com.