Information & Support for the LGMD Community


LGMD Resources

The limb-girdle muscular dystrophy community is inspiring and supportive. There are many helpful resources and organizations to support families living with LGMD. Here are just a few to get you started.

Coalition to Cure Calpain 3:

Jain Foundation:

Kurt+Peter Foundation:


GFB Onlus:

Muscular Dystrophy Association USA:

LGMD 2L Foundation:

LGMD 2D Foundation:

LGMD 2i Fund:

The Speak Foundation:

Camrons Cure:

Sarepta does not endorse nor is responsible for the content of any of the listed websites or the services provided by these organizations. This is not a complete list of available websites.

If your LGMD advocacy organization does not appear on this list and you would like to make contact with Sarepta, please email

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What Is LGMD?

A group of genetic diseases that cause progressive muscle weakness…

Disease Management

Current approaches focus on symptom management for individual patient needs…